det.social

Tom KindlonAn example of the thoughtless or insensitive comments people with chronic illnesses can sometimes hearFrom a blog post by an Irish woman with ME who has become a published writer <a href="https://solongasicanbreathe.wordpress.com/2025/04/14/walking-ambling-stumbling/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://solongasicanbreathe.wordpress.com/2025/04/14/walking-ambling-stumbling/</a><a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a>

Tom Kindlon<a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://disabled.social/tags/ChronicIllnessMemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnessMemes</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a>

Tom Kindlon"We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride"<a href="https://thesicktimes.org/2024/11/05/we-set-out-to-make-our-invisible-illness-visible-in-south-africa-with-sick-pride/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://thesicktimes.org/2024/11/05/we-set-out-to-make-our-invisible-illness-visible-in-south-africa-with-sick-pride/</a>Image is from April 2025 AMMES Newsletter<a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MyalgicEncephalomyelitis</a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicFatigueSyndrome</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PASC</a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a>

Tom Kindlon"Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those [who are ill] who need encouragement & cheer"Links: <a href="https://www.cards2warriors.org/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.cards2warriors.org/</a> <a href="https://www.cards2warriors.org/happy-mail" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.cards2warriors.org/happy-mail</a>Image from Institute for Neuro-Immune Medicine e-bulletin<a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a>

Tom KindlonUK ME Association: DWP Replies to Dr Charles Shepherd’s Letter Regarding Welfare Cuts. <a href="https://meassociation.org.uk/2025/04/dwp-replies-to-dr-charles-shepherds-letter-regarding-welfare-cuts/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://meassociation.org.uk/2025/04/dwp-replies-to-dr-charles-shepherds-letter-regarding-welfare-cuts/</a>Dr Shepherd's letter raised concerns that people with fluctuation conditions are not properly assessed. The reply links the government consultation open for feedback. Consultation survey: <a href="https://forms.office.com/pages/responsepage.aspx?id=6fbxllcQF0GsKIDN_ob4w8sPhcBFC_lLibLhGndbUv9UN0Y4UTYzNUVVM0lFUThFWFM3VVEwSFJPMCQlQCN0PWcu&route=shorturl" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://forms.office.com/pages/responsepage.aspx?id=6fbxllcQF0GsKIDN_ob4w8sPhcBFC_lLibLhGndbUv9UN0Y4UTYzNUVVM0lFUThFWFM3VVEwSFJPMCQlQCN0PWcu&route=shorturl</a>;<a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Brian HawthorneSome days, it takes until mid-afternoon for me to realize that I am still crashed from over-exertion two days ago. I just realized that in 6 hours, I have so far succeeded at <ol><li>Getting out of bed</li><li>Taking morning meds</li><li>Making coffee and breakfast</li><li>Eating and drinking same</li><li>Typing at the world </li><li>Watching the finches at the feeder</li></ol><a href="https://infosec.exchange/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://infosec.exchange/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://infosec.exchange/tags/LivingWithLongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LivingWithLongCovid</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://infosec.exchange/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://infosec.exchange/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a>

Tom Kindlon(UK) "I spoke with my friend's husband who's a PIP assessor, for advice about my upcoming PIP review, and was given some useful insights about how the process works from the inside, including specifics about ME & <a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a> ..."<a href="https://threadreaderapp.com/thread/1907029145986421125.html" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://threadreaderapp.com/thread/1907029145986421125.html</a><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a> <a href="https://disabled.social/tags/PosturalOrthostaticTachycardiaSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PosturalOrthostaticTachycardiaSyndrome</a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@pots</a>

datum (n=1)Hey! Are you in the USA? Do you (or someone you know) have any of:<ul><li>hypersomnia</li><li>complex sleep disturbances</li><li>postural orthostatic tachycardia syndrome, or POTS</li></ul>which started or worsened after a bout of acute COVID-19?Trials are open for treatments for these symptoms!<blockquote>Those interested in participating in the trials can contact the clinic for screening to see if they are eligible. The team can be reached via email at covidtrialsuva@uvahealth.org, or by phone at 434-243-4008 or toll-free at 855-882-5334.</blockquote>and they seem like good folks:<blockquote>“We see patients coming in who are frustrated because they look fairly normal, but they cannot fully function and are not being believed,” she said. “So, for those people, I want to say this is truly a disease and you are not imagining anything.”</blockquote>While UVA is in Virginia the article suggests it is a USA-wide national study.<a href="https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://news.virginia.edu/content/uva-health-takes-aim-long-covid-two-national-clinical-trials</a><a href="https://zeroes.ca/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID19</a> <a href="https://zeroes.ca/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#COVID</a> <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCOVID</a> <a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://zeroes.ca/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LC</a> <a href="https://zeroes.ca/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PEM</a> <a href="https://zeroes.ca/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PostExertionalMalaise</a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

AuroraFrage an fellow <a href="https://zirk.us/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> und andere chronisch kranke und/oder behinderte Menschen.Vernissage aber so barrierefrei wie möglich, beste Uhrzeit, damit man noch Löffel, wenig Schmerzen oder Medi-Nebenwirkungen, Kraft etc. hat.<a href="https://zirk.us/tags/Vernissage" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Vernissage</a> <a href="https://zirk.us/tags/ChronischeErkrankung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronischeErkrankung</a> <a href="https://zirk.us/tags/BarrierefreiheitIstMehrAlsEineRampe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#BarrierefreiheitIstMehrAlsEineRampe</a>

🔥Cassandra🔥Does anyone happen to have informative but concise info about the current federal public service health care plan re: employee entitlement to wage replacement while disabled?Dare to dream: dans les deux langues.<a href="https://ottawa.place/tags/Ottawa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Ottawa</a> <a href="https://ottawa.place/tags/PSHCP" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PSHCP</a> <a href="https://ottawa.place/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://ottawa.place/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

Sp4rkR4t :yes_scotland:My daughter has a <a href="https://mastodon.scot/tags/wordpress" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#wordpress</a> site to act as her art <a href="https://mastodon.scot/tags/portfolio" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#portfolio</a> and prints shop through <a href="https://mastodon.scot/tags/printify" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#printify</a>. This is a bit heavy & slow way to do things but I wasn't well enough to build her anything custom. I'm now a bit better at my <a href="https://mastodon.scot/tags/pacing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#pacing</a> so was thinking about building her a new static site that plugs into her printify shop. Anyone have ideas about what toolkits have wordpress import, handle image compression well and integrate with printify? <a href="https://mastodon.scot/tags/webdev" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#webdev</a> <a href="https://mastodon.scot/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://mastodon.scot/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mecfs</a>

KymberlyStarted with an osteopath to explore abdominal/lung pain to see if imaging might be required. She thinks it’s due mostly to compensating for the breast cancer DIEP and pelvic ops, with <a href="https://old.mermaid.town/tags/spondyloarthritis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spondyloarthritis</a> complicating things. Will also get her to have a play with my slippy neck bones later.I can breathe into my upper lungs for the first time since 2017 though, so she’s seems to be doing good.But oy heck do her tiny gentle movements hit me like a truck a day later - am utterly exhausted and will need to spend the day flat. Osteopathy is Australia is closer to manual physiotherapy here in Germany - more massagy and stretching. Osteopathy here though is very strange - magical fingers making tiny movements or putting slight pressure in seemingly unrelated spots.<a href="https://old.mermaid.town/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

Valerie RoneyErmahgawd!!! I found the OG article that started "spoon theory." I hadn't seen this in years. Am so jazzed. <a href="https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/</a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://disabled.social/tags/spoonTheory" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonTheory</a> <a href="https://disabled.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://disabled.social/tags/spoons" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoons</a> <a href="https://disabled.social/tags/butYouDontLookSick" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#butYouDontLookSick</a>

Carolin (Kamera-)KramJoa, ich sach mal: Überdosiert mit L-Thyroxin bin ich wohl immer noch nicht. 🤣(Und anhand der Spikes kann man sehr gut sehen, wann die Pudeldame Geräusche gemacht hat. ❤️ Die hatte gestern eine Narkose für eine Zahnbehandlung, da ist mein Körper jetzt gerade noch sehr in Hab-Acht-Stellung.)<a href="https://mastodon.pnpde.social/tags/dosisanpassung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#dosisanpassung</a> <a href="https://mastodon.pnpde.social/tags/ChronischKrank" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronischKrank</a> <a href="https://mastodon.pnpde.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a>

KymberlyQuarterly appointment season right now is seeing me spend many, many hours in waiting rooms. So, I started a simple rib sock to keep the anxiety down. The cute little project bag is the best thing paired with that D ring on the bag. I can’t drop it or fumble too much when called in to see the doc. And bamboo circulars means the yarn doesn’t slip off too easily.Yarn is old Lana Grossa Meilenweit sock, needles are Takumi Pro by Clover, fav bag is an old ESO messenger from Bethesda before quality went downhill, project bag is handmade - cute kitty fabric from Australia ❤️So I can get my stitches in for <a href="https://old.mermaid.town/tags/The100DayProject" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#The100DayProject</a> around the post appointment crashing.<a href="https://old.mermaid.town/tags/knitting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#knitting</a> <a href="https://old.mermaid.town/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://old.mermaid.town/tags/Chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Chronicillness</a>

Tom Kindlon(US) Telehealth UpdateImage from Massachusetts ME/CFS & FM Association March 2025 e-newsletter: <a href="https://massmecfs.org/newsletters/919-2025-03-march-newsletter" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://massmecfs.org/newsletters/919-2025-03-march-newsletter</a><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

Valerie RoneyI'm struggling in the comfortable but bone weary state I think might be healing, but it's hard to relax into, because survival. 🤷‍♀️I continue to yearn for something like long covid recovery homes. I think things would shift for a lot of people if they could just get a chance to rest deeply and be well nourished for a few months in a row.<a href="https://disabled.social/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#longCovid</a> <a href="https://disabled.social/tags/brainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#brainFog</a> <a href="https://disabled.social/tags/burnout" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#burnout</a> <a href="https://disabled.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fatigue</a> <a href="https://disabled.social/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a>

Tom Kindlon🧵 "Chronic diseases misdiagnosed as psychosomatic can lead to long term damage to physical & mental wellbeing, study finds"<a href="https://www.eurekalert.org/news-releases/1074887" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.eurekalert.org/news-releases/1074887</a>Research on people with autoimmune diseases but people with other conditions will sadly be able to relate<a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@lupus</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> 1/

Batichi1/ Thought folks might find this useful <a href="https://masto.batichi.net/tags/ADHD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ADHD</a> <a href="https://masto.batichi.net/tags/Neurodivergence" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neurodivergence</a> <a href="https://masto.batichi.net/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://www.youtube.com/shorts/OP3FwBByt78" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.youtube.com/shorts/OP3FwBByt78</a>This took me a long time to figure out because my task brain works the same way. This includes things like cooking, exercising, etc. You really have to find the -actual- smallest chunk, because:1. Not all tasks have to be done daily so it's important to separate 2. Writing the list out of tasks should be the first task 3. It's best to keep goals to 5 tasks and no more unless you feel up to it

datum (n=1)Hey spoonies in the USA if you want to WFH for a company supporting non-profits: <a href="https://mstdn.social/@abbynormative/114106850091527064" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://mstdn.social/@abbynormative/114106850091527064</a><a href="https://zeroes.ca/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwLC</a> <a href="https://zeroes.ca/tags/spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonies</a> <a href="https://zeroes.ca/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a>

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